By Matt Ray
Danville, VA – Folks celebrated a very special birthday in Danville Saturday afternoon. Last week, ABC-13 told you about 15-year old Tate Malone.. who has cerebral palsy.
Tate said all he wanted for his birthday was lots of cards. Tate’s mom says since our story aired Monday, Tate has gotten close to ten thousand birthday cards. They’ve come from as far as China and South Korea.
Saturday, at his 16th birthday party, the walls were decorated with music notes and just a few of the cards from around the world.
Tate’s favorite thing is music and he was all smiles as he was treated to a special gospel performance. People who had never met Tate’s family drove hours to personally deliver cards and gifts. Tate’s mom says the love and support has meant the world to Tate.
“Each night we do a little bit with him and he just bursts out laughing and then we put the song on, ‘Happy,’ because they sing it in school in class. And his shoulders were just going up and down. He was so tickled. He was just bursting out laughing,” said Tambra Malone.
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By Paul Gross, Founder of the Cerebral Palsy Research Network
In April, many of you participated in a survey about medical treatments for your child. The survey was intended to help a group of researchers decide on the most important cerebral palsy treatments to study. The survey garnered more than 1,200 responses and your answers were very important in shaping the study questions.
The study, entitled “Enhancing Surgical Decision Making for Families of Children with Cerebral Palsy: A Practice-Based Evidence Study,” was submitted on July 31, 2015 to the Patient Centered Outcomes Research Institute for funding consideration.
Your feedback indicated that invasive surgeries were the most difficult decisions to make in the treatment of your loved ones. If funded, the study will enroll 2,500 patients that are being considered for surgery affecting their legs.
Study on Invasive Leg Surgery & Options
There are numerous surgical treatments that are offered for the legs and there is no research comparing the outcomes of those types of treatments. Approximately 500 children will not go through any surgery and will receive less invasive medical treatments such as oral baclofen, bracing and/or physical therapy. This group will be the “control” to compare to the surgical treatment group. But, unlike other studies that randomize which treatments are selected, this study will simply observe which choices families make and measure the outcomes that they view as important for their child.
The lead principal investigator of this study is Dr. Richard Stevenson from the University of Virginia. There are 18 hospitals across the United States and Canada that will participate in this study. A more in-depth description of the study aims and participating centers can be found on the study website.
We wanted to thank the Cerebral Palsy Family Network for their participation in this survey.
CHICAGO (AP) — The Chicago Sky has signed a 14-year-old girl with cerebral palsy to a one-day contract to fulfill her dream of being a professional basketball player.
Kiara Hood, of the Chicago suburb of Blue Island, and her family spent Friday with the team as they prepared to take on the Washington Mystics at Allstate Arena.
Kiara got to join the team for a shoot-around, was formally signed and took questions from media.
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