Category Archives: Education

Dr. Joanne Kurtzberg and Colleagues Begin Cerebral Palsy Study

By Duke Translational Medicine Institute

In March, 2010, the Robertson Foundation awarded Duke University $10.2 million to develop a state-of-the-art Translational Cell Therapy Center (CT2), a shared resource facility advancing cell-based therapy research—partly in support of the translational work of Drs. Joanne Kurtzberg, Gordon Worley, Ricky Goldstein, and Mohamad Mikati. As a result of this grant, Dr. Kurtzberg created a team of researchers, including Drs. Gordon Worley, Ricky Goldstein, Alan Song, Jessica Sun, Kate Gustafson, and Mohamad Mikati who launched a study to evaluate whether, in children with cerebral palsy (CP), a single intravenous infusion of a child’s own umbilical cord stem cells will cure or at least lessen the severity of the disorder.

Read the full story.

Our Favorite CP Teachers Video Series

 

Did you nominate a teacher in last year’s “Our Favorite CP Teacher” contest? We were flooded with entries and received so many inspiring stories from your favorite teachers and therapists! We’ve compiled the photos into a series of short videos to showcase all of the nominees. View all of the videos in the series on our YouTube channel or visit our contest page to read the nominees’ stories.

 

 

Join Our Family

Sign up for our free e-newsletter for more blogs, articles, and news about CP kids and their families.

Cerebral Palsy: A Look Back at 2013 Part 3

CPFN 2013 Year in Review
Welcome to our third and final installment of “A Look Back at 2013.” In our first blog, we focused on the research accomplishments that made the headlines in 2013, new practices in the management of epilepsy, and stories of life-changing advances in therapies and other interventions. In our second installment, we highlighted the advancements made in prevention and technology. In our final installment, you might say that we’ve saved the best for last!

As amazing as the past year’s medical accomplishments were, they can’t compare to the inspiring heroes and warriors for cerebral palsy awareness that made news in 2013!

Heroes and Dreams Realized

Last year’s stories of challenges and dreams realized left us humbled and in wonder. At the top of our list of “AWESOME” was the story of Steven Ciccone, a pastry chef with cerebral palsy who was hailed as a hero in the Metro-North train derailment. With total disregard for his own safety and injuries, Steven assisted other passengers immediately after the devastating accident that claimed four lives.

We were also awed by the stories of a girl with cerebral palsy who climbed Mount Kilimanjaro and a seven-year-old with CP who became a model. We also found countless acts of selfless giving, including Nikolas Royale who skydives to help others fund aftercare for selective dorsal rhizotomy (SDR), and operation which helps ease the symptoms of cerebral palsy.

Our hearts soared for Captain Yehonatan Cohen, an Israeli Defense Force (IDF) officer who dutifully serves his country despite being physically disabled since birth. We also shared the story of Patricia and Richard Logan, who adopted five kids with cerebral palsy. They serve as an example of a life of selfless giving and unconditional love.

Advocacy and Awareness

Last year was a testament to the ever-increasing level of advocacy, acceptance and awareness of disabilities around the world. The first ever high level disability summit was held at the UN to address the needs of the more than 1 billion people with disabilities globally. Even airlines were told to step up their games and improve access for people with disabilities.

We were delighted to read of the Smithsonian Institution’s program to spotlight artists with disabilities. More television characters with disabilities began to take the spotlight in 2013. Even Santa set an example, as retailers around the country created sensory-friendly environments for children with special needs to enjoy the magic of Christmas!

Here’s to 2014!

We applaud those that helped make 2013 such a great year for the advancement of cerebral palsy treatment and awareness! Let’s keep up the momentum and do our part to make 2014 even better!

What was your favorite story from 2013? Share it in the comments below!

Don’t forget to check out CP Year in Review: Part 1 and CP Year in Review Part 2.
What was your favorite story from 2013? Share it in the comments below!

 

Join Our Family

Sign up for our free e-newsletter for more blogs, articles, and news about CP kids and their families.

FREE MEDICAL AND LEGAL RESOURCES

The Cerebral Palsy Survival Guide is a free, state-specific resource list for everything from everyday activities to emergency situations.

BI-WEEKLY E-NEWSLETTER SIGN-UP

Sign up for our e-newsletter to receive the latest in CP news, resources and

LATEST BLOG POSTS

Weighing the Ethics of Artificial Wombs

Elizabeth Yuko Photo Credit: Kevin P. Casey for The New York Times Via The New York Times With 3-D printing, lab-grown organs and lifelike prosthetic limbs, science creeps ever nearer…

Read more

Study: The Family Dog Could Help Boost Physical Activity for Kids with Disabilities

Michelle Klampe Via Oregon State University The family dog could serve as a partner and ally in efforts to help children with disabilities incorporate more physical activity into their daily…

Read more