Category Archives: News

Gloria Estefan Pays Medical Costs for Hialeah Boy with Cerebral Palsy

By Estephani Cano

With Gloria Estefan’s financial help, 8-year-old Nicholas Katrib of Hialeah will receive medical treatment that will help him walk normally. The singing star says she will cover all medical expenses for Nicholas, who has cerebral palsy.

About three weeks ago, el Nuevo Herald ran a story about Nicholas and his mother, Yordanka Fernández, 38, a Hialeah resident of Cuban descent, who was desperately seeking help for her son.

“I had a lot of faith in this publication, but I didn’t imagine that after this something so miraculous would happen,” Fernández said.

Nicholas was born three months premature, when his organs had not fully formed. The growth of his liver, lungs, and stomach was stimulated with steroids, as well as his skin and corneas. He was 11 inches long and weighed just one pound.

Read the full story here.

 

Join Our Family

Sign up for our free e-newsletter for more blogs, articles, and news about CP kids and their families.

Student with Cerebral Palsy Launches Book

By Andrea Ng

Student Hitesh Ramchandani, 23, can run 2.4km in less than 11 minutes. This is no easy feat, considering that he has cerebral palsy and is unable to control some of his muscles.

Thanks to his determination, family support and countless therapy and training sessions, he has not only ditched the wheelchair, but also represented Singapore at the Asian Paralympic Games.

His journey of grit and hard work is detailed in Better Than Normal, an autobiography that was launched yesterday.

Mr Ramchandani, who is pursuing a foundation degree in sports science at PSB Academy, said: “The best way to send out a message is through a book, and I hope my story will inspire people to motivate themselves.”

A mistake made when Mr Ramchandani was delivered had left him with cerebral palsy. As a baby, he could not crawl or lift his head. He also struggled to hold a bottle in his hands and stand upright as a child.

Read the full story here.

 

Join Our Family

Sign up for our free e-newsletter for more blogs, articles, and news about CP kids and their families.

Maya’s Gift to Richmond: Music Therapy for People with Developmental Disabilities

By Semany Gashaw

As she gets off the BART, Chloe Lipton makes her way to one of her favorite destinations: Maya’s Music Therapy Fund. Her new caretaker, Kayla Jenkins, worries that they might be going in the wrong direction. But Lipton knows exactly where she’s going—after all it’s been 25 years.

Lipton, Maya’s most loyal client, has cerebral palsy, a disability resulting from damage to the brain, which manifests itself in muscular incoordination and speech disturbances. For the past 27 years, Maya’s has provided music therapy sessions to adults and teenagers with developmental disabilities ranging from cerebral palsy to autism, Down syndrome or Rett Syndrome, a neurological disability found mostly in girls.

The fund was created in memory of Maya Cooper, a young girl who was born in Tel Aviv, but grew up in Berkeley. She was severely disabled, unable to walk or talk,  yet she found a way to communicate through music. Her mother, Joanna Cooper, writing by email, said that Maya “loved to have her fingers strum guitar, banjo or mandolin strings, and to get assistance in tapping a drum, push the keys of a piano or shake maracas or a tambourine.” Her parents set up the fund to enable others with disabilities to experience the benefits of group and individual music therapy.

Read the full story here.

 

JOIN OUR FAMILY

Sign up for our free e-newsletter for more blogs, articles, and news about CP kids and their families.

FREE MEDICAL AND LEGAL RESOURCES

The Cerebral Palsy Survival Guide is a free, state-specific resource list for everything from everyday activities to emergency situations.

BI-WEEKLY E-NEWSLETTER SIGN-UP

Sign up for our e-newsletter to receive the latest in CP news, resources and

LATEST BLOG POSTS

Weighing the Ethics of Artificial Wombs

Elizabeth Yuko Photo Credit: Kevin P. Casey for The New York Times Via The New York Times With 3-D printing, lab-grown organs and lifelike prosthetic limbs, science creeps ever nearer…

Read more

Study: The Family Dog Could Help Boost Physical Activity for Kids with Disabilities

Michelle Klampe Via Oregon State University The family dog could serve as a partner and ally in efforts to help children with disabilities incorporate more physical activity into their daily…

Read more