Category Archives: News

Meet the Newmarket Couple Running the London Marathon Three-legged to Help Their Son Walk

By Lydia Fallon

Giggling away as he enjoys some playful rough and tumble with his twin brother Solomon – a cheeky grin etched on his little face – Sebastian Brokenshire-Dyke appears to be just like any other boisterous 2-year-old.

A happy little chap with a mop of white blonde hair, he’s “fiercely determined, full of energy and very loveable”, according to mum Lorna, “although obviously I’m biased,” she laughs, rolling her eyes, before reciting a sweet story about the time he managed to raise a laugh from a “grumpy old man” at the doctors’ surgery.

“I thought if he can crack him, he can crack anyone,” Lorna chuckles.

Seb’s zest for life is really quite remarkable, because underneath the smile he’s hiding a condition which makes daily life a constant struggle.

Seb has cerebral palsy (CP) spastic diplegia, and while his twin brother enjoys playing in the park, splashing in puddles and kicking footballs, Seb can only watch, confined by a condition which means he can’t stand or walk independently.

Read the full story here.

 

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James Strong Chosen as Alabama Champion

By Kaitlin Candelaria

Those that know him will tell you that James Strong lives up to his last name. At only 13 years old, Strong has already undergone over 20 surgeries and has a wide range of conditions including hydrocephalus, Chiari malformation, cerebral palsy and Dandy-Walker Syndrome. He is also wheelchair bound due an inoperable tumor on his spinal cord.

“James is what perseverance is,” Kim Mitchell, James’ mother said. “He’s the definition of strength. He is the definition of faith, and he is the complete definition of life.”

Mitchell found out at five months pregnant that Strong would suffer from hydrocephalus and need a shunt placed in his brain immediately after his birth.

“I knew from that day that things were going to be a little bit different in our life,” Mitchell said. “However, different is not bad. James has been a blessing and an inspiration.”

Read the full story here.

 

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Louth Student Awarded for Communication Aid for People with Cerebral Palsy

By UTV Ireland Staff, Dublin

Conor Begley is to receive a Rotary Young Citizen Award this week in recognition of his invention which assists those with disabilities.

He developed a device called QuickCom. It allows his aunt Fiona Begley – who has severe cerebral palsy and can’t speak – to communicate with people by touching her head against the back of her wheelchair.

The QuickCom piece of tech means Fiona can spell out words via a computer.

Conor explained the work behind the project to UTV Ireland: “It took a bit of practice. I started in the summer and worked through until October when I had the first prototype done and from there Fiona was telling me what she wanted.

She could then tell me what she wanted changed and improved.

The young student completed the first prototype in December and has been honing the technology ever since.

Read the full story here.

 

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