Category Archives: Stories

My Wonderful and Crazy Life with CP

By: Ashley Mohesky

Living with Cerebral Palsy is not easy, but I wouldn't change it for the world because every day I learn a valuable lesson.Hello! My name is Ashley Mohesky. I’m 22 years old and I have mixed cerebral palsy. Mixed CP is a combination of spastic cerebral palsy and athetoid cerebral palsy, which causes involuntary movements in the body. When I was born, I weighed 2 lbs 3 oz and my brain lost about 3 minutes of oxygen. Because of that, I am in a wheelchair and I use an iPad to communicate.

The doctors told my family that I was either going to be a vegetable my whole life or dead, but at the age of 3, I started a program in school called Preschool Program for Children With Disabilities. PPCD is a special education class for children with moderate to severe disabilities that are at the age for pre-kindergarten. Within a month of being in the program, my teacher realized that I didn’t need to be in her class because I was at a higher level than the other students. There was just one issue though, I couldn’t communicate other than pointing to what I wanted or needed. The school district decided to let me test a device called a Dynavox. After playing with it for a few minutes, I started typing out words and creating sentences without assistance. Once I got a Dynavox of my own, I was taken out of PPCD and transferred to a regular education first grade class. From then on, I excelled in every grade level.

After graduating from high school, I began my higher education and received straight A’s my first semester of college. I graduated in May with my associates degree in General Studies. I will transfer this fall to our local university to work on a bachelors in Social Work and a masters in Counseling to become a rehabilitation counselor to help improve the lives of people with disabilities of all kinds.

In the Fall of 2011, I started giving motivational speeches to give people hope when they are going through a rough time. My whole life I’ve been judged just by my wheelchair and communication device, and I want everyone to know that a person with any sort of disability is just like every other person that does not have a disorder. They just have more challenges and have to do tasks differently. By delivering my speeches and telling everyone about my story, I hope to diminish the stereotype of people who can’t walk, talk, or have other difficulties are intellectually challenged.

Living with Cerebral Palsy is not easy, but I wouldn’t change it for the world because every day I learn a valuable lesson, such as life is too short to not go for your dreams despite the setbacks, and to appreciate what you have because it could always be worse. To the outside world, CP sounds like a horrible disease because it prevents people from living their lives, but it’s not. In my case, CP only affects my ability to walk, talk, and eat/drink by mouth and I’m so incredibly grateful for it.

If you or your family member has CP, do not give up on yourself or them, and don’t be susceptible to pity. No matter what the challenges you face are, someone out there always has it worse than you do. Even though there are hard days, having faith and determination in every part of your life, you or your family member can get through anything in life that comes your way. “I can do anything through Christ who strengthens me” Philippians 4:13.

Cortney’s Journey to Become a Model

By: Michele Kovack

Cortney is not only physically disabled but also mentally impaired.  This journey has given her so much joy. She adores dressing up and being in front of the camera.My daughter Cortney recently turned 20. She has moderate/severe cerebral palsy. Her journey of modeling started about 4 years ago. Being her mom, I always thought she was pretty and had a natural love for the camera. But I am her mom. Four years ago, someone on Facebook contacted me about her becoming a model. That’s when Cortney’s journey began.

She was photographed by several well-known Chicago photographers, was featured on WGN news, and got a few odd jobs modeling for boutiques and Etsy shops. She got her big break last May when Cerebral Palsy Family Network posted a picture collage of Cortney. It put her out there and let people and companies know that this girl of mine wanted to model. She had a dream like most teenage girls, and her life went from ordinary to extraordinary.

She was contacted by numerous small companies, was featured on a California commercial for an adaptive clothing line, “walked” the runway in Branson, MO, and was the first disabled teenager to grace the cover of Chicago’s Special Parent magazine. She is now represented by a KMR Talent agency in California and Model Source magazine.

Cortney is not only physically disabled but also mentally impaired. This journey has given her so much joy. She flourishes in the attention and adores dressing up and being in front of the camera. It has given her an identity. She struggled with who she was and what she wanted to do with her life. Most things are extremely difficult for her. This was something she was good at, and most importantly enjoyed. People around her started to notice her for something other than her disability.

I started a Facebook page to document her journey about 6 months ago. Social media is a powerful tool! It has gotten her “out there” a bit more. Her latest dream is to model for Sadie Robertson’s new line of modest prom dresses designed by Sherri Hill. Fingers crossed that Cortney grabs their attention!

As for me, her mom, it has given us something to enjoy together. Every parent wants that. Whether it is watching your child play a sport, instrument etc., I lacked that for a very long time. (Unless you count endless doctor’s appointments or therapy.) It has become “our” time. Dressing up, putting on makeup, fixing her hair. It may sound trite, but to her….to me…it is everything.

As a parent, I truly believe you have to advocate for your child. Listen to their dreams and run with it. Be the “squeaky wheel” if you will. I have been persistent…and sometimes annoying, but it has paid off. I don’t know where Cortney will end up with all of this. But that’s okay. We are enjoying the ride. Together.

Looking Back and Moving Forward: 10 Years After Lizzy’s Trial

By: Lisa Viele

Seeking legal help for Lizzy's Birth Injury was a difficult decision.Ten years ago we started our trial. I remember it clearly. Well, most of it. Lizzy was 5. We had moved from Sumter, SC to Myrtle Beach in 2003. My husband Damon was teaching and coaching. Same thing he did in Sumter. A brand new school opened and he was blessed to get right in and become the head golf coach. I was a stay-at-home mom to Lizzy, who has cerebral palsy, and Em, who was 2 at the time. Lizzy was in preschool. I was still driving my Astro van. I loved it. All of Lizzy’s equipment could fit in the back.

We arrived at the courthouse after staying in a hotel in Sumter. Sumter is where Lizzy was born so naturally this is where the trial was. I was so anxious. I remember walking into the courtroom and just shaking. I had never been in a courtroom before. It was intimidating. We were told to sit to the left side of the room, while the right side was full of about 100 potential jurors. They had been summoned for jury duty for our case. A case that began in 2000. It was a long 5 years of excruciating ups and downs.

October 1999: My Intuition Kicks In

I came home after finally getting my birth records from the hospital and immediately contacted the first attorney I could find that “looked” professional. I didn’t know any better and I was desperate. I just knew I wanted someone with lots of experience. This was only after having an argument with Damon about it. He was totally against any kind of litigation. It was “too public” and he said no. My intuition had kicked in, and I said yes. I called this attorney at 7:30 at night and he took my call. (Thank you Mr. Pat McWhirter.) He listened to me for a very long time. He said he would help us. I felt relieved already. He called me a few days later and said that he had spoken with attorney Ken Suggs with Janet, Jenner and Suggs in Columbia and he would take our case. And just like that, we had representation. Not one penny upfront.

April 10, 2005: Day 1 of the Trial

As I sat in the courtroom, I looked at the people that were there to sit on the jury for our case. I was nervous that they wouldn’t able to understand what happened or that they would assume things about us as parents. I knew what the defense was going to do, and it was going to hurt. Bad.

The judge walked in and just started eliminating people. She asked several questions to the group including:

  • Have you ever been a juror on a malpractice case before?
  • Are you a teacher?
  • Have you ever known the plaintiffs?
  • Have you ever brought a lawsuit again anyone?

If they answered yes, they would go up to the judge and explain further. Then she would dismiss many of them. Amazingly, we ended up with just the right amount. Twelve jurors and two alternates. And so the trial began…immediately.

We moved to the table in front of the courtroom. This was our place for the next four days. Right next to the jury. Both sides had their opening statements. The defense’s statement was that we abused her and the doctor was not responsible for Lizzy’s condition. Our attorney Ken Suggs had his opening statement and then he called our first witness. I will always remember this guy. He had dark hair. Thin. Just a regular guy. He was an OB/GYN. When he opened his mouth, I was stunned by what he said about Lizzy. As a doctor, he said he would have delivered her at 11:00 pm the night before! This man was emotional about Lizzy. He taught all of us how to read a fetal monitor strip. I just cried. Now I know why those monitor strips were missing from my medical records when I finally got them.

After court ended for the day, we met him outside the courtroom and he just broke down. He hugged us and told us how sorry he was. His testimony was strong.

When we left court that first day, we went back to our hotel room. Damon and I were tired, but we still talked about the day. It was emotional. Bedtime was early for us. We still had four more full days to go.

April 11, 2005: Day 2 of the Trial

Day two. We were told to wear clothes that we would wear to work. Damon dressed like he was going to school everyday and I looked…presentable. I was a stay at home mom so my usual clothes were leggings and a sweatshirt. Our attorneys explained to us what would happen that day. Experts they would call. Just keeping us in the mix. Really, we just sat there and listened. We really had no part in these first two days. Day three would be our time.

The defense tried to discredit everything by digging up “dirt” on us. There was nothing, but they tried.

We had our friend/pediatrician Dr. Key take the stand. He was great. He had been there at her birth, and was a great expert witness. I remember him coming into my recovery room with Damon. It was 7:00 at night and I still had not seen Lizzy. She was born at 9:00 that morning. Damon shut the TV off, sat down in the chair in the corner of the room and put his head in his hands. Dr. Key sat on my bed and took my hand. He told me that there was nothing more they could do for her here at this hospital and that she needed to be transported to the children’s hospital. I had no idea that there was anything wrong. I cried and begged to see her before she left. They rolled in this tube with her in it. They opened it up and I was able to touch her toe. I wouldn’t hold her for the first time until three days later.

Dr. Key was just as wonderful on the stand that second trial day. He made us feel great, telling the jury what kind of parents we were. He said that our families went to church together and that Damon was a great teacher and coach. Then the defense tried to discredit everything by digging up “dirt” on us. There was nothing, but they tried. For example, after I had Emily in 2002, I took a break from Lizzy’s therapies–just for a few weeks. They tried to say a good mother wouldn’t have taken a break. They asked if he agreed. He didn’t. Hearing that, I felt a little bad about taking a break. But there was nothing we could have done to change what happened to Lizzy at her birth… so I moved on.

The rest of the day played out in a similar way. We had witnesses take the stand, then the defense would refer back to their depositions and try to make them slip up. The next day would be even more difficult. Damon and I would take the stand. How do you prepare for that?

You don’t.

January 2000: First Signs Something Was Wrong

Lizzy had a well-baby checkup with Dr. Key. She was three months old. He did the normal checks with her: weight, height, head circumference, and asked how she was with her seizure medicine. She’d been on it since birth to stop her seizures. The only side effect was that she was a lethargic baby. (Phenobarbital is a strong seizure medicine and I hate it. She ended up coming off it in a few months because she was showing no development.) Her checkup was uneventful and we left.

A week later I got a call from the neurologist that saw her at the children’s hospital. He sounded panicked. He told me that he received the latest CAT scan of her brain and she was bleeding. She had a CAT scan at birth and a follow-up one in late December. He told me to get to children’s hospital immediately. My heart began pumping so fast and I was just crying. I scooped my baby girl up, strapped her in the Astro van, and we headed to the high school to find Damon. We got to the children’s hospital in a panic. Oddly, no one else was. Her doctor was not there and we waited an hour to get a room. Then, the whole situation just got weird. When we finally got a room for her, a nurse came in now and then to check on her. Lizzy was calm and happy. They told us to stay overnight and we did. They said the ophthalmologist would be in the next day. The ophthalmologist? Isn’t that an eye doctor?

The next morning, the ophthalmologist came in to examine Lizzy. He told us she had some visual defects and gave us a referral to see a local eye doctor. This was the first that we knew of any disabilities with her. Then he said, “I don’t see any tears (not watery), and the cornea looks fine.” Crickets in the room. “Um, what?” I was confused. Then he just left the room. The next person to walk into the room almost made me vomit. She introduced herself as a social worker for the county. I just about lost it. What was happening here? As she examined Lizzy, she just stopped and her head dropped.

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