Category Archives: Stories

Aquatic Movement Therapy Seen to Stimulate Brain Activity and Improve Well-Being of CP Patients

By Joana Fernandes, PHD

Via Cerebral Palsy News Today
 
Assisted aquatic movement therapy may improve the mental health and stimulate the brains of children and adults with cerebral palsy (CP), according to a new study.

The study, “Effects Of Assisted Aquatic Movement And Horseback Riding Therapies On Emotion And Brain Activation In Patients With Cerebral Palsy,” was published in The Journal of Physical Therapy Science.

Previous studies have shown that assisted movement therapies decrease muscle stiffness and improve movement in CP patients, as well as bringing psychological benefits. But studies showing the relationship between therapeutic interventions and patients’ emotional and cognitive response to them are still lacking.

The study enrolled 32 right-handed CP patients, ages 8 to 48, to investigate the effect of assisted aquatic movement and horseback riding therapies on emotion and brain activation. Patients, representing CP disease stages from 1 to 3 (patients able to walk independently or with the help of a hand-held mobility device), were assigned to either the aquatic therapy group (AATG), the horseback riding group (HRTG), or a control group.

In AATG, patients performed warm-up exercises in a pool for 10 minutes, then did assisted exercises for 30 minutes (for instance, floating on the water in a sitting posture and walking backward and forward). The session closed with 10 minutes of simple, cool-down exercises.

HRTG was also 50 minutes long, consisting of warm-up exercises, a slow increase in speed then continued riding at a steady speed for 30 minutes, then a slow decrease in speed followed by a five-minute cool down.

Patients in the control group watched a movie for 50 minutes.

READ THE FULL ARTICLE FROM CEREBRAL PALSY NEWS TODAY

Woman with Cerebral Palsy Gets Dream Opportunity with Disney Show

Via Fox Newsinsight_game_jess_jordan_ss1_28584471_0

A non-verbal Disney enthusiast may see her fairytale ending come to life after landing a chance to pitch her story ideas to the creators of Disney Junior’s “Doc McStuffin’s” TV Show. Erin Feeney, who has cerebral palsy and is confined to a wheelchair, learned of her unique opportunity after attending the Disney on Ice show “Follow Your Heart” in Chicago, Fox 5 NY reported.

The show’s writer, Shea Fontana, met with 25-year-old Feeney after the show and told her she had read her work before coming to Chicago. Feeney’s book, “Kids in Toyland,” was recently made into a prize-winning movie short, Fox 5 NY reported. Fontana called Feeney talented, and said “Doc McStuffin’s” would be a great fit for her ideas.

“’Doc McStuffin’s’ is all about kids having this acceptance, and realizing that no matter what, no matter what life throws at them, they can follow their dreams,” Fontana told Fox 5 NY.

READ FULL STORY

Happy 10th Anniversary, CPFN!

By Lee Vander Loop

What an exciting milestone! As an editor of the Cerebral Palsy Family Network, I’m honored to write this blog to commemorate this anniversary and reflect on this past decade and what it has meant to me to be a part of this wonderful organization.

Before starting, I want to take this opportunity to thank all the founding families that make the CP Family Network possible. Without their unselfish contribution and support, we would not have this amazing resource for families.

To our families around the world, thank you for sharing your stories and your amazing Hero’s with us! You are the reason our network is the largest web-based organization in the world! You are the reason we exist.

In writing this, I was asked what, personally, were some highlights of the past 10 years of my role with CPFN.

More Than a Community, We Are Family

First and foremost, the highlight for me has been meeting and interacting with all the remarkable families that make up the CP Family Network. I’m in awe of what CPFN has become. Every day is a ‘highlight’ for me as I experience the daily joy of reading all the comments of love and support among our families. I have the honor of assisting families in their search for information and the pleasure of viewing the photos of all our inspiring and courageous Heroes.

Another unequivocal highlight through the years would be the outpouring of love, support and kind words I received from this community, after the passing of our precious Danielle. Thank you. Your thoughtfulness gave me strength and comfort and will forever be remembered.

When our daughter was born with CP my resources for information consisted of a book on anatomy and physiology and the Yellow Pages phone directory. Home computers hadn’t yet evolved and I was lost.

It’s Our Purpose to Serve You and Your Children

When I was approached by CPFN to join their team, it was an honor. Our partnership has provided me an opportunity to save other families from the frustrations I faced in my search for answers. Being editor of CPFN has enabled me to help other families acquire the information, network and support needed to empower them in caring for their children with CP.

CPFN’s quest has always been to unite families with the common goal of helping to improve the lives of children with cerebral palsy. My vision as Editor has become a reality! CPFN has grown to encompass families the world over, sharing their knowledge, stories and support.

I’m so proud and honored to be a part of this family!

Thank you for 10 Great Years!

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