1-800-CPFamily (273-2645)

By Julie Mansmann

The first time that Dylan Hronec surfed two and a half years ago was one of the best days of his life. The Bellmorite, now 22, said he had always wanted to try the sport –– he just didn’t know whether it was possible.

Hronec has used a wheelchair since he was 2 years old because he has cerebral palsy, a lifelong physical condition that limits his muscle control and movement. Thanks to an adaptive surf board and a little help from his friends, however, he has not been kept from the water.

“I had never felt so much freedom,” he said of the first time he surfed. “When you get hit with that first wave in the face, it’s like getting hit with concrete. I was kind of like, ‘Whoa, what am I doing?’ But riding a wave is the best feeling in the world. It’s a way for me to forget about everything that I deal with.”

Hronec, who graduated from Mepham High School in North Bellmore in 2010 and now studies journalism at Hofstra University, said he knew that he could surf after watching YouTube videos of Jesse Billauer. The California native and professional surfer is quadriplegic, with limited to no movement in his arms and legs.

Read the full story.

 

Join Our Family

Sign up for our free e-newsletter for more blogs, articles, and news about CP kids and their families.

By Dennis Ferrier

It’s homecoming Friday in Lawrence County, and the queen of the court is a young woman you will never forget.

She is a beautiful woman with a radiant smile, but check all your other expectations at the door, because the queen and her court defy stereotypes.

In a world where special ed can be a heartless punch line, at Lawrence County it is truly special, where kids look past wheelchairs and slurred speech and see princesses and queens.

“Stereotypes are overrated. We don’t stereotype people, especially in our class, we love each other,” said student Lauren Old.

This year’s queen, Cheyenne Keaton, is a lifelong friend of student body President Carson Black.

“She is one of the most beautiful people I know. She’s in a wheelchair, she has cerebral palsy. I’ve known her since kindergarten, so she’s always had a special place in my heart,” Black said.

Keaton is wheelchair bound and struggles with her speech, but she smiles as quickly as anyone you’ll ever meet.

She will be crowned Friday night with her court by her side.

Read the full story.

 

Join Our Family

Sign up for our free e-newsletter for more blogs, articles, and news about CP kids and their families.

By Bill Murphy

A little boy with cerebral palsy won over the heart of an Everyday Hero.

Jennifer Roberts works as a server at Irish 31 in Westchase. Roberts was touched by the story of Neiko Henson. Neiko’s mom, Courtney Henson, said the 4-year-old is a special child.

“He was born with cerebral palsy. We’re trying to help him raise money for his dog to become a service dog,” Courtney Henson said.

Neiko suffered a stroke and brain damage when he was five weeks old. He faces the possibility of heart surgery, and the family is hoping to raise funds so their dog Molly can be trained.

“She will have equipment that’s hooked onto her back. She will help him with balance,” Courtney Henson said. “Neiko can’t get around. His balance is very poor. He’s blind in his right eye. So she’s going to be his guide.”

That’s where Roberts stepped in. She and the rest of the team at Irish 31 started a fundraiser to help pay for the training costs. Roberts tells customers at the restaurant Neiko’s story in the hope they will want to contribute to Molly’s training.

Read the full story.

 

Join Our Family

Sign up for our free e-newsletter for more blogs, articles, and news about CP kids and their families.