Legal and Medical Resources to Empower Cerebral Palsy Families

1-800-CPFamily 1-800-(273-2645)
0

Heroes of the DayFebruary 2017

Each month, we receive hundreds of submissions from families all over the world, sharing their stories as well as photos of their children. If you would like to feature your child as the Hero of the Day, send us a photo of them to our Facebook page.

Amia

Amia
I would love to nominate my daughter Amia Eve Holt for hero of the day. At 10 months old, our daughter was diagnosed with Hemiplegia Cerebral Palsy, but even with the disability nothing is stopping this princess. Amia loves to run, dance and play. Her smile makes my day and she’s my pride and joy.
 
 
 
 
 
 

Kaden

Kaden
This is Kaden, who is six years old with severe cerebral palsy. I would like to nominate him for hero of the day and ask for prayers as he battles RSV and is on life support.
 
 
 
 
 
 
 
 
 

Ameera

Ameera
I would like to nominate my niece Ameera as the hero of the day. She is two years old and has had CP since birth. She is such a sweetheart and a happy soul.
 
 
 
 
 
 
 
 
 

Alex

Ryan (3)
I would love for my son Alex to be featured for hero of the day. He is 9 years old and has CMV/CP. He has taught me what it is to be strong and brave! His smile and his love for others is beautiful and I wouldn’t trade him for the world.
 
 
 
 
 
 
 
 
 

Vanessa

Vanessa
I would love to nominate my beautiful sister Vanessa who is 19 as our family hero ,she is our beautiful butterfly from heaven without her in our lives we wouldn’t know the true meaning of Love,Faith,& Strength.
 
 
 
 
 
 
 
 
 

Ryan

Ryan (1)
I would like to name my son Ryan for Hero of the day. He is such a blessing to our family. He is 4 years and 9 months, living in a refugee camp in Kenya. It’s not easy but we thank God in all. Mommy loves you baby.
 
 
 
 
 
 
 
 

Angelina

Angelina
I would like to make my daughter Angelina hero of the day. She was born with CP and is still a fighter.
 
 
 
 
 
 
 
 
 
 

Angelo

Angelo
This is my son Angelo, he’s 4 years old and such an amazing kid! He is the strongest little guy I know and such a blessing in my life. His smile and laughter will light up an entire room. I love my Angelo!
 
 
 
 
 
 
 
 
 
 

Selene

Selene
This is Selene, she is a 16 month-old Preemie with Mild Cerebral palsy, Torticollis, congenital Infantile Hemangioma, Positional Plagiocephaly, Development Delay, Chronic Bronchiolitis Due To Respiratory Syncytial Virus, Gerd, Heart Disease, Vision Abnormalities, Swallowing Dysfunction, but she is FULL of life and always smiling…. Our Motto is ” Every Life Has Value”! We Love Princess Warrior Selene!
 
 
 
 
 
 

Brittney

Brittney
This is my 19 year old daughter Brittney Sourbeer. She has Cerebral Palsy and has Lennox Gastaut Syndrome (LGS) – a rare and severe kind of epilepsy that starts in childhood. Children with LGS have seizures often, and they have several different kinds of seizures. She takes three seizures meds daily Keppra, Clonazepam, and Banzel. She has three PRN (as needed) meds for seizures Keppra, Lorazepam and Diastat. She has a Vagus Nerve Stimulation (VNS) is designed to prevent seizures by sending regular, mild pulses of electrical energy to the brain via the vagus nerve. These pulses are supplied by a device something like a pacemaker. She is also on a Ketogenic Diet – high-fat, adequate-protein, low-carbohydrate diet that in medicine is used primarily to treat difficult-to-control (refractory) epilepsy in children. The diet forces the body to burn fats rather than carbohydrates. Even with all this medical interventions she still has seizures.
 
 
 
 
 
 

Naydine

Naydine
My beautiful princess is my hero today and forever. Her name is Naydine Mayorga and she’s 12 years old. She’s been through so much, many surgeries and never complains. She’s strong and brave. She is the real hero in my family.
 
 
 
 
 
 
 
 
 
 

Ryan

Ryan
I nominate my brother-in-law Ryan Shane, dressed as the joker on Halloween. He has CP among other things, and has taught us all what life and love are all about!
 
 
 
 
 
 
 
 
 
 
 

Tyler

Tyler
I would like to nominate my son Tyler. He was diagnosed with Cerebral Palsy when he was 18 months old. He is now 15 years old and doesn’t let much hold him back. He is a true inspiration in my life and those who know him.
 
 
 
 
 
 
 
 
 
 
 

Ethan

Ethan (1)
This is my son Ethan. He is 21 years old. He was born by emergency c-section and was diagnosed with Epilepsy, Microcephaly, CP, Autism-PDD. He started therapy very early and has learned so much. Little hope was given to us when we brought him home at 10 days old. He makes us proud every day. He still attends school in an all-inclusive classroom. He loves school and his friends. We plan for him to go to a sheltered workshop when he graduates. He has participated in Special Olympics and has many medals. He enjoys playing music and putting on shows for his family and friends.
 
 
 
 
 
 
 

Abdallah

hAbdalla
Abdallah is my hero!!! He is 8 years old and was diagnosed with CP by the age of 2 years. He struggles with coordination and balance, his speech, and his fine motor skills. It’s been exactly a year and half since he had stem cells transplantation in Beijing where he had 2 shots of stem cells injection. We noticed a remarkable improvement in speech, walks with minimal falls but still struggling with balance and coordination, he can use toilet with or without assistance. We are hoping to see more improvement. Abdallah is lovely, courageous, brilliant and eager to learn and explores to environment. We are so proud of him!
 
 
 
 
 
 
 

Landyn

Landyn
I would like to nominate my son Landyn, who is 5 with CP and multiple brain malformations. He has come so far from a couple years ago. He has balance problem and low muscle tone. Just two years ago he was using a walker. He now can walk on his own and is getting better and better with his balance. He is such a blessing and brings so much joy!
 
 
 
 
 
 
 
 
 
 

Devin

Devin
This is Devin. He’s my Hero! He’s 14 years old w/ CP. I’d love to feature him as my Hero.
 
 
 
 
 
 
 
 
 
 

JJ

JJ
This is JJ. He is autistic and has moderate CP. He is full of life and energy. He loves batman and he loves to play with his cars.
 
 
 
 
 
 
 
 
 
 

Greyson

Greyson
My name is Greyson and I am 4 years old.
 
 
 
 
 
 
 
 
 
 

Brandon

Brandon
I would like to nominate my 17-year-old son Brandon for “hero of the day”. He’s the happiest and sweetest kid on Earth and has filled my life with more love than I could have ever imagined.
 
 
 
 
 
 
 
 
 
 

FREE MEDICAL AND LEGAL RESOURCES

The Cerebral Palsy Survival Guide is a free, state-specific resource list for everything from everyday activities to emergency situations.

BI-WEEKLY E-NEWSLETTER SIGN-UP

Sign up for our e-newsletter to receive the latest in CP news, resources and

LATEST
BLOG POSTS

Woman with Cerebral Palsy Gets Dream Opportunity with Disney Show

Via Fox News A non-verbal Disney enthusiast may see her fairytale ending come to life after landing a chance to pitch her story ideas to the creators of Disney Junior’s…

Read more

New Technology Allows a Women with Cerebral Palsy to Play Music With Her Eyes

Via SBS.com By SBS Insight At a backyard pool party ten years ago, Dr Jordan Nguyen decided to attempt an especially creative jump from the diving board. Lacking control, he…

Read more