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Heroes of the DayMarch 2016

Each month, we receive hundreds of submissions from families all over the world, sharing their stories as well as photos of their children. If you would like to feature your child as the Hero of the Day, send us a photo of them to our facebook page.

Katie

Katie
I’m Katie. I’m 22 yrs old with mild cerebral palsy and I feel like people at my end of the spectrum never get talked about. The thing is, it’s very possible to live ‘a normal life’ with it. Because my case is not severe, a lot of people assume I was in a car wreck or something else. I hear it all the time when I tell people, there’s no way you have that, you’re not in a wheel chair or mentally challenged, but yes we do exist and go on to do great things. I’ve never had anything handed to me. I work and plan to become a college student soon just like any other person. I’m one of the many faces of cp and hope to change some of the stereotypes.
 
 
 

Kai

Kai
My 9-year-old son Kai is my hero. He has severe cerebral palsy due to oxygen deprivation at birth, he can’t walk, talk or do anything for himself, but he is the happiest and purest soul I’ve ever encountered! He brings nothing but joy to everyone around him and is always happy, smiling and laughing! He’s handsome, loving and my best friend! Puts all the small things people moan about into perspective when he can be so happy and positive in spite of his disability. For these reasons I’d like to nominate him for hero of the day!
 
 
 

Emily

Emily
Hello, I would like to nominate my niece for the hero of the day! Her name is Emily and she is 10 years old. She’s the most amazing, beautiful, loving girl around. Despite having quadriplegic cerebral palsy, along with epilepsy and multiple other problems, she is one of the happiest children I’ve ever met. She’s truly amazing and we are all so blessed to have her in our lives.
 
 
 

Genesis

Genesis (1)
I would love to nominate my daughter, Genesis Faith, as a hero. She has inspired myself and so many others because of her determination and courage to never give up. She is now 11 years old and also free from seizures for 7 years now. I give God all the glory because he has been our source of strength. She makes me proud everyday.
 
 
 

Jayden

Jayden (1)
I’d like to nominate my son Jayden. He is an amazing 8 year old. He suffers from brain damage and cerebral palsy due to hospital negligence. Even with his condition, I’ve never met a more determined person. No matter what the obstacle is, Jayden will always try his best to overcome it. Even though he can’t do things on his own, nothing limits him, and he figures out a way and to get it done. This year was the first year he could take a school picture, and he did such a wonderful job. I couldn’t be prouder of my son. I love him so much, he’s the greatest blessing I could ever receive.
 
 
 

Donte

Donte (1)
Hi, this is my son Donte Montgomery and he has CP. For a long time I was told he would never walk, but God is working in his life. Donte is currently a student at Riverside Elementary in Jeffersonville, Indiana, and his teacher put us in touch with the best Physical Therapist that took a chance to work with Donte. Now they say he should be moving on his own with the support of his walker at any moment now!
 
 
 

Johnathan

Johnathan (1)
This is Johnathan. He is 12 years old and a twin. He also has an older brother with cp. Johnathan is a huge wrestling fan and always has a smile on his face. He has been in school since he was four, but recently we have been dealing with discrimination in our school district. He is currently not in school. We are being forced to move so he can continue his education. Please share his story because discrimination in our school system does exist. If anyone has any advice or resources that can assist us, any help would be greatly appreciated.
 
 
 
 

Dean

Dean (1)
This is my nephew Dean, who was born at 27 weeks weighing only 1lb 4oz. The doctors told my sister and her husband that he wouldn’t live much longer. He is now 12 years old. He had bleeding on his brain when he was born and he developed CP. He has it in all 4 extremities and will never walk or talk, but he is the happiest kid in the whole world and he is truly our miracle!!!
 
 
 

Luis

Luis
Hi, this is my son Luis who recently turned 2 years old. He was born 35 weeks old and was not breathing, so the doctors did CPR twice. Luis has hypotonia, chromosome 10q deletions and developmental delays. He is not walking or talking yet, but he is standing. Luis does not eat food, just his bottle for now. The doctors in Boston told me that he was not going to walk or stand because he was so floppy. I thank God everyday that my son is still here with us. Luis, we love always, from mommy, daddy and your 4 brothers.
 
 
 

Natalie

Natalie
I would like to nominate my daughter, Natalie, for hero of the day. Natalie has the most rare form of Cerebral Palsy (ataxic – it effects balance, coordination, and control), which effects only about 5% of all Cerebral Palsy cases. Her diagnosis was caused by doctor negligence. She has fallen so many times we probably need to get her kneepads. She also has fallen directly on her chin and needed 9 stitches. She is the light of our life and even though on the outside she seems to be perfectly normal, she has many difficulties. Because she has the most rare form, there are not many support groups that understand her diagnosis, which makes it difficult for us as parents to give her all that she deserves. She powers through and has the strongest will to succeed.
 
 
 
 

Valentina

Valentina
This is Valentina, my hero of the day. Born with bad formation of the brain, she was supposed to live only 2 hours after birth. She just turned 5. She owns the most beautiful smile in the world. We are from Brasil, and are very proud of what she has conquered up to now.
 
 
 
 
 

Amanda

Amanda
This is my daughter, Amanda, who was born 16 weeks early weighing just a pound and a half. Brain damage from the early birth resulted in hydrocephalus, slow growth, and spastic cerebral palsy. Her first shunt was infected and she has had 5 shunt revisions. This last revision has lasted over a year and a half. Through all the surgeries, pneumonia, oxygen tanks, and therapies, she has been a sweet, strong, smart, (sometimes a little too) stubborn girl who brings joy to everyone she has met. She learned to walk at two and hasn’t slowed down since. She has dimples and eye lashes for miles and I couldn’t love her more.
 
 
 
 

Jillian

Jillian
Hi! This is my daughter Jillian Bless, who is 4 years old. She was diagnosed with cerebral palsy at birth. Due to her condition, her eyes are affected and she can’t see. She also cannot talk or walk, but she is my inspiration and my everything.
 
 
 
 

Agnes

Agnes
My name is Agnes, and I have been living with Hemiplegia Cerebral Palsy for 13 years now. I was told I wouldn’t live past my first birthday because my CP diagnosis was so severe, but I have survived!
 
 
 
 
 
 
 

Derek

Derek
My son Derek Palacios is 11 years old with spastic quadriplegia cerebral palsy and epilepsy. Last Halloween was the first time he was strong enough to go trick-or-treating. To make it special, his uncle and I created a custom motorcycle wheelchair for him so he could be a Harley biker for Halloween.
 
 

Mimi

Mimi
I would like to nominate my daughter Mimi as a true hero. As a result of traumatic birth, she was not expected to live, much less be where she is today. When she was 2 months old, she came out of a coma with a fractured skull, dislocated hips and on a feeding tube. Her survival showed the doctors that miracles do happen. Today, this 27 year old not only loves to dance and sing, but is intelligent and caring. Her everyday challenges do not stop her from living life. She always has a smile and fights through each hospital stay like a true champ. She is more concerned about other’s feelings than her own. She inspires and motivates not only me, but also anyone who meets her. Our Mimi is a hero!
 
 

Michael & Matthew

Michael&Matthew
I wanted to nominate my twin boys, Michael and Matthew, as a CP Heroes of the Day. They were born at 32 weeks and spent 7 weeks in the NICU. They were not diagnosed with CP until they were 2. They are such amazing boys that are full of life, love and laugher! They beat the odds everyday!
 
 
 

Rafael

Rafael
I would like to nominate my son Rafael as the Hero of the Day. He is five and a half years old and has diplegic spastic cp. He was born 32 weeks in an emergency c-section and had loss of oxygen. He goes to regular kindergarten, has regular speech and receives hydrotherapy, physiotherapy and Botox for his spastic legs. Now he is starting to play soccer but it’s quite difficult for him. He loves music, playing with his little brother and is always smiling. Since he was born, he teaches me everyday the art of patience and how to enjoy life.
 
 
 

Shannon

Shannon
Shannon is 14 and soon to be 15 years old. She loves the computer and hanging with her family. She is diagnosed with cp, scoliosis, seizure disorder, and is nonverbal. She used to have a feeding tube till the age of 7, now she eats just about anything, but doesn’t like goodies/sweets. She walks independently, but uses a wheelchair for long distance. She loves to go on long walks with her chair. We have participated in several community walks, and hope to do many more. We want to decorate her wheelchair and participate in some walks in coming up. Shannon has been home-schooled the last couple of years, and has been thriving when getting out more in the community.
 
 
 

Marcus

Marcus
Here’s my hero diagnosed with CP at 11 months. His name is Marcus. He was diagnosed with cerebral palsy just after his 1st birthday. Even though they told us he may never walk or talk, he is so determined that he will pull up on the furniture, so it’s a start.
 
 
 
 

Dylan

Dylan
This is Dylan; he is 3.5 and the true light of our world. Our story is a little different as both Dylan and our daughter, Madilynn, were born at 31 weeks. Both have CP, while Madilynn also has hydrocephalus (water on the brain), which required shunts. Even though she was a fighter, Madilynn’s little body could not keep up, and she went to soar with the angels at 19 months. Although Dylan had a set back with seizures, he continued to thrive and he is our hero! Dylan is still attempting to reach his goals physically, and cognitively he has become quite the rock star! He can count and knows his ABC’s, loves to dance with his agile left side, LOVES to play on the tablet and can hold a conversation. Dylan loves his family and finds great happiness with his GA GA (my mom). Although it crushed my soul to lose our daughter, not a single day goes by without thinking of her, this little guy saved me from a very dark place after her passing. Dylan truly, truly is not only the light of our lives but a family hero! Love you Dill Pickle!
 
 
 
 

Thomas

Thomas
I’d like to nominate my son, Thomas Ybarra, as HERO OF THE DAY! He was born at 26 weeks on October 10, 2010, weighing 2lbs 12oz. He had a rather rough start spending 2 months at the children’s hospital of Central California in the neo-natal intensive care unit undergoing heart surgery and surviving a brain hemorrhage. December 11, 2010, I was able to take him home and thought the nightmare was behind us and I could stop and enjoy my new baby, but that was short lived. At 7 months old he was diagnosed with spastic quadriplegia cerebral palsy. The doctors were telling me he may never walk, but by his 5th birthday he was walking without assistive devices and riding a bike with help! He’s in typical education classes and I couldn’t be more proud to have him as my son. This boy is my hero! Everyone who comes into contact with him is touched by his strong will to fight, succeed and have a life without limits! He loves superheroes and I think he is a real life hero.
 
 
 
 

Zach

Zach
My 25-year-old son, Zach, is our third out of 4 children. He was born healthy and happy but was in a drowning accident at 15 months old. He is non-verbal, non-ambulatory and needs complete care. His smile is contagious and his love of life is amazing!
 
 
 
 

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