Here are some of the needs a Certified Life Care Planner will consider to develop a specific plan. If you cannot afford a life care planner, below is a checklist that you can fill in for your child’s needs.
Medical Care/ Routine
Is there a need for an annual exam? Which specialists need to be seen and how often?
Future Medical Care/Surgical Intervention or Aggressive Treatment
Are there plans for aggressive treatment or additional surgeries such as reconstruction?
Home Care/Facility Care
Can the child live at home or will a facility be needed? What about specialty programs such as annual camps? What level of care will the child require?
How often and what type of non-physician evaluations will be required? For example, physical, speech, recreational, occupational and music therapy; dietary assessment, vision, hearing and swallowing studies, etc.
What therapies will be needed? Will these require professional case management? Will behavioral, rehabilitation, or pastoral counseling or family education be needed?
Diagnostic Testing/Educational Assessment
What testing is necessary and how often?
All prescription and non-prescription drugs, their dosages, quantities and frequency of use; all other supplies such as bladder and bowel program, skin care, etc.
Home Furnishings and Accessories
Will the child need a specialty bed? Portable ramps? Lifts?
Will the family need a special van for transportation? Will the child be able to drive at some point and if so, are hand controls sufficient or is a specialty vehicle needed? Can local transportation companies be used?
What types and configuration of wheelchairs will the child require as he/she ages? Power? shower? manual? specialty? ventilator? reclining? quad pegs? recreational? What about maintenance and accessories?
Aids for Independent Functioning
What types of equipment can the child use to function as independently as possible?
Will the child need braces? What about replacement and maintenance?
Health and Strength Maintenance
What specialty recreation is needed, such as adapted games or equipment