Legal and Medical Resources to Empower Cerebral Palsy Families

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Life Care Plan Checklist

Here are some of the needs a Certified Life Care Planner will consider to develop a specific plan.  If you cannot afford a life care planner, below is a checklist that you can fill in for your child’s needs.

Medical Care/ Routine

Is there a need for an annual exam? Which specialists need to be seen and how often?

Future Medical Care/Surgical Intervention or Aggressive Treatment

Are there plans for aggressive treatment or additional surgeries such as reconstruction?

Home Care/Facility Care

Can the child live at home or will a facility be needed? What about specialty programs such as annual camps? What level of care will the child require?

Evaluations

How often and what type of non-physician evaluations will be required? For example, physical, speech, recreational, occupational and music therapy; dietary assessment, vision, hearing and swallowing studies, etc.

Therapies

What therapies will be needed? Will these require professional case management? Will behavioral, rehabilitation, or pastoral counseling or family education be needed?

Diagnostic Testing/Educational Assessment

What testing is necessary and how often?

Drug/Supply Needs

All prescription and non-prescription drugs, their dosages, quantities and frequency of use; all other supplies such as bladder and bowel program, skin care, etc.

Home Furnishings and Accessories

Will the child need a specialty bed? Portable ramps? Lifts?

Transportation

Will the family need a special van for transportation? Will the child be able to drive at some point and if so, are hand controls sufficient or is a specialty vehicle needed? Can local transportation companies be used?

Wheelchair Needs

What types and configuration of wheelchairs will the child require as he/she ages? Power? shower? manual? specialty? ventilator? reclining? quad pegs? recreational? What about maintenance and accessories?

Aids for Independent Functioning

What types of equipment can the child use to function as independently as possible?

Orthotics/Prosthetics

Will the child need braces? What about replacement and maintenance?

Health and Strength Maintenance

What specialty recreation is needed, such as adapted games or equipment

FREE MEDICAL AND LEGAL RESOURCES

The Cerebral Palsy Survival Guide is a free, state-specific resource list for everything from everyday activities to emergency situations.

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