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CP Research Study Seeks Parents & Caregivers

As parents and caregivers to special needs and often non-verbal children, we must be the voice for our children. We must establish a rapport with the physicians and clinicians who will aid us in the understanding; decision-making and resolving of the medical challenges so many children with CP face.

The Cerebral Palsy Research Network and CP NOW Foundation are embarking on a project funded by the Patient-Centered Outcomes Research Institute (PCORI) to help develop a community of people committed to the principles of patient-centered research for CP.

Research CP is an educational webinar series and agenda that will culminate in a one-and-a-half day workshop in Chicago where 20 participants who have listened to the webinars will help set a research agenda for cerebral palsy. Travel, lodging, and meals will be covered as well as a $600 stipend. We’re honored to present this opportunity to our community!

Registration for the first webinar is now live, so sign up today!

The schedule for the Research CP Webinar series is as follows:

Research CP Project Overview
Wednesday, March 8, 2017 @ 8pm ET
Paul Gross & Ed Hurvitz, MD

Clinical Research and Comparative Effectiveness
Wednesday, March 15, 2017 @ 8pm ET
Susan Horn, PhD

Quality Improvement
Wednesday, March 22, 2017 @ 8pm ET
Amy Bailes, PT PhD

Patient-Centered Research and Patient-Reported Outcomes
Wednesday, March 29, 2017 @ 8pm ET
Jacbon Kean, PhD

Patient Registries
Tuesday, April 4, 2017 @ 8pm ET
Paul Gross, Jay Riva-Cambrin, MD & Megan O’Boyle

A survey to collect top research questions and outcomes will be included in this project. The results of this survey will provide essential input for the workshop where participants will synthesize this input into a prioritized research agenda for CP. Completing this survey is an opportunity to have your voice heard in what’s important to you regarding the future of CP research.

To learn more about the Research CP project, visit CPResearch.net

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