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3 Days to Stand for a Cure




 

CP Family Network is partnering with LetsCureCP.org to find a cure for cerebral palsy. We both firmly believe that CP families are our children’s first and best advocates. Between now and March 25, you can make a donation to help fund medical research for the advancement of cerebral palsy knowledge and treatment. Please help us stand for a cure by donating to this worthy cause.







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100% of funds will go to support LetsCureCP.org’s mission.

 

About Let’s Cure CP

Let’s Cure CP is a non-profit organization created by two families who wanted a better life for their children with cerebral palsy. Let’s Cure CP works with reputable research institutions that conduct various types of research, including stem cell and genetic, to help better understand and treat CP. As an organization that was also founded by the families of children with CP, CP Family Network is proud to partner with Let’s Cure CP.

 

Cerebral Palsy Research

Let’s Cure CP strives to fund and support the most promising cerebral palsy medical studies. Much of the current research is centered on testing the effectiveness of banked cord blood or bone marrow stem cells for therapeutic use in children with cerebral palsy. The goal of these studies is to determine if this kind of therapy can in some cases reduce or reverse measurable symptoms of CP. You can read more about the research that Let’s Cure CP funds here.

 

Specific Research Initiatives & Clinical Trial Information:

UT Health Science Center at Houston stem cell research

Dr. Kruer’s Cerebral Palsy Study

17 Responses to “3 Days to Stand for a Cure”

  1. Greg Rumbolt says:

    My son is three and a half years old, he has severe spastic CP along with other medical conditions. He is currently recovering from nissen fundoplication. To think that there maybe a cure for CP is awe inspiring, keep up the great work.

  2. Donna Valente says:

    How do you purchase a Cure CP shirt? Thank you!

  3. Amee Barclay says:

    To whom it may concern,

    I am a 35 year old woman with Spastic Diplegia CP and would love to help find a cure. I can’t financially help because I am trying to support a total of 5 people in my house. If I can help in some other way, please let me know. I would love to have kids and not worry about them developing cerebral palsy.

    Amee Barclay

  4. Morgan Hansen says:

    Hi, my name is Morgan Hansen, I am 22 and my fiancés name is Cameron Jannati, he is 24. We are the extremely proud parents of a two year old, who has Spastic Qaudriplegic Cerebral Palsy, Hydrocephalus, severe Periventricular Leukomalecia, seizure disorder, high muscle tone, chronic pain, Dystonic CP, a VP shunt, and a traumatic brain Injury. He was born at 30 weeks and was perfectly healthy, however he was diagnosed with meningitis at 5 days old, which began to wreak havoc on his 3lb 4oz little body. Doctors told us that he had the worst brain that they had ever seen, and that he would be in a vegetative state if he even made it. They told us to say goodbye to him twice and just leave him up there, but we refused to do so! Two years later and we have devoted our lives to advocating for his cure. We have been to six different states and have gotten him cutting edge treatments such as two rounds of Stem Cells in Arizona which we will do every six months, and two rounds of forty HBOT treatments, which have improved his life. We spend every night studying treatments and therapies, and we advocate for our son daily! He can’t do very many activities such as walking, talking, holding up his head, eating on his own, sitting up, he can’t communicate, or track toys, but he is still a true blessing! He smiled and laughs all day everyday even through the pain. He has a page called “The Cure for Tristan James” on Facebook with more information about his story. We want a show to spread awareness of treatments and Cerebral Palsy, because I have helped three three other kids with his conditions get stem cell treatments, and we want to help more. -Morgan Hansen

  5. Morgan Hansen says:

    Hi, my name is Morgan Hansen, I am 22 and my fiancés name is Cameron Jannati, he is 24. We are the extremely proud parents of a two year old, who has Spastic Qaudriplegic Cerebral Palsy, Hydrocephalus, severe Periventricular Leukomalecia, seizure disorder, high muscle tone, chronic pain, Dystonic CP, a VP shunt, and a traumatic brain Injury. He was born at 30 weeks and was perfectly healthy, however he was diagnosed with meningitis at 5 days old, which began to wreak havoc on his 3lb 4oz little body. Doctors told us that he had the worst brain that they had ever seen, and that he would be in a vegetative state if he even made it. They told us to say goodbye to him twice and just leave him up there, but we refused to do so! Two years later and we have devoted our lives to advocating for his cure. We have been to six different states and have gotten him cutting edge treatments such as two rounds of Stem Cells in Arizona which we will do every six months, and two rounds of forty HBOT treatments, which have improved his life. We spend every night studying treatments and therapies, and we advocate for our son daily! He can’t do very many activities such as walking, talking, holding up his head, eating on his own, sitting up, he can’t communicate, or track toys, but he is still a true blessing! He smiled and laughs all day everyday even through the pain. He has a page called “The Cure for Tristan James” on Facebook with more information about his story. We want a show to spread awareness of treatments and Cerebral Palsy, because I have helped three three other kids with his conditions get stem cell treatments, and we want to help more. -Morgan Hansen

  6. dawn hamilton says:

    Would be great to see the law firm match some of these funds!

  7. [...] and March 25, donations to help fund medical research for cerebral palsy can be made through the CP Family Network website. One hundred percent (100%) of donations will go to support Lets Cure CP’s mission, which is [...]

  8. beverley says:

    Hi I’m beverley, I’m 29. I have cerable palsy diplegic. Just a quick note to say how happy I am to find a date g ur cerable palsy. I know don’t feel alone and that I can express how I’m feeling on a day to day basis. I have 2 beautiful daughters that I love with all my heart. Just want to say keep up the hard work guys and I’m going to start helping raise funds anyway I can, wish I’d known about this site a lot sooner. Xxx

  9. Shannon McClain says:

    I am a near 34 year old woman with CP (affects my legs and balance ONLY) I was diagnosed at like 3 or 4. I have done everything that doctors and naysayers have said I couldn’t/ would do, including getting pregnant and carrying my healthy child to full term. After that, I married the love of my life. I have had many surgeries and challenges along the way to get to where I am and although I would like to say I wouldn’t have it any other way, a cure would be nice and the need for crutches, walkers and the occasional use of a wheelchair would be eliminated. I would love a shirt but will not have the funds for one til April 3. Will they be available for purchase then or is it only til March 25?

  10. Tammy says:

    Why is the logo on the back? My daughter has CP and uses a wheelchair. No one would see the logo.

  11. Sara Bird says:

    Thank you for creating this organization. I have always felt there needs to be more awareness towards CP! I am 38 and I have CP myself.

  12. Helen says:

    Hi My daughter Noreen has been diagnosed w a mild case of Cerebral Palsy Spastic Dyplegia. She is mainly affected in her left leg and toes in. She wears AFOS during the day and has night foot and hip braces and mobile stabilizers to help her. We have done Botox and serial casting and I am trying to do all conservative therapy until she turns 8 and then we will have to discuss surgical or other approaches if nec. I fear that day. She is a triplet and very tuff and determined and my hero but I am hoping to be her hero in the end and give her a normal life. I am curious about anyone who has input for stem cells or anything. I will travel the earth and am inspired by others, yours truly.., mom w faith for a cure!

  13. Danny says:

    Is there a text number? I am going to write on my car to stand for the awareness and I was wondering if there is a text number to add for people who see it and wish to donate. You know since its easier to text :)

  14. Junichi Takashio says:

    I am Physiotherapist in Japan.
    I want also to buy Cure CP shirt.

  15. jgodwin says:

    We are very sorry that we cannot ship outside of the US at this time. We will keep you posted when we can. Thanks1

  16. jgodwin says:

    THEY DID!

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