Posts in 'Updates'

Hyperbaric Oxygen Therapy: Does it Work?

In the News, Treatments and Therapies, Updates

By John Lehman Hyperbaric Oxygen Therapy (HBOT) is commonly used to treat scuba divers with the bends, but recently, the therapy has been used to treat certain types of cerebral palsy, as well. Opinions vary as to whether or not HBOT is an effective treatment for children with cerebral palsy. Some research has shown improvements... Read More

Hypotonia – Floppy Infant Syndrome

Associated Conditions, In the News, Updates

By The CP Family Network Children who are born with or develop cerebral palsy may also manifest a condition known as hypotonia, or low muscle tone (the amount of tension or resistance to movement in a muscle). The condition is also known as “Floppy infant syndrome” or “infantile hypotonia”. Individuals with this diagnosis are said... Read More

Pediatric Stroke and Cerebral Palsy

Causes of Cerebral Palsy, Updates

By John Lehman Most people think strokes affect only adults, but they can also occur in children, even before birth. In fact, pediatric stroke is one of the leading causes of death in children. Children who have suffered from a pediatric stroke also have a high chance of developing cerebral palsy. Like cerebral palsy, pediatric... Read More

Fetal Heart Monitoring: How Mistakes Happen in Labor and Delivery

Causes of Cerebral Palsy, Updates

By Giles Manley, MD, JD CPFN Medical Advisor Electronic fetal heart monitoring is used in nearly all hospital births in the U.S. The technology has been around for decades. But medical records of brain-injured infants I review each week frequently show that although fetal monitoring was showing the baby was experiencing high levels of distress... Read More

Eating Problems Stressful but Treatable

In the News, Treatments and Therapies, Updates

By Lee Vander Loop CP Family Network Editor When my first daughter was born, she exhibited a total absence of any type of oral motor skill and necessitated a feeding tube from birth. Her birth injuries occurred as a result of “cord complications of unknown origin.” When our second child was born with cord complications,... Read More

Cerebral Palsy and Childhood Osteoporosis

Child Development, Updates

By: John Hartford Although osteoporosis is often associated with aging, it is a common complication of cerebral palsy beginning in childhood. Osteoporosis is a disorder characterized by lack of bone density or bone mass. Children with these “thin bones” can sustain bone fractures from very little trauma, seriously impacting all areas of their lives. Although... Read More

A Mother’s Quest to Feed Her Child

In the News, Tips for Parents, Updates

When you’re having a child, all you really care about is that he or she is healthy. Unfortunately, life doesn’t always work out that way. My husband and I discovered this the day our son, AJ, had a major seizure when he was 5 months old. Following that were diagnoses of cerebral palsy (CP), epilepsy... Read More

The Benefits of Family-Centered Care

Patient Care, Updates

Many, if not most, treatment plans for children with CP are centered exclusively on the child. While a child’s interests must always be considered, the narrow focus of such plans can overlook crucial factors, like “living environment” and “family dynamic.” Read More

Adaptive Seating Devices for Children with CP

Patient Care, Updates

Technically speaking, adaptive seating is defined as “modifications to seating devices to improve sitting posture and/or postural control in mobility-impaired individuals.” In layman’s terms, this means your child may use a special desk or wheelchair that has been personalized to meet their needs. Read More

How to Take Time for Yourself

In the News, Respite Care, Updates

Respite care. How many parents really take advantage of this short-term break from caring for a family member with cerebral palsy? As a single mother, I was offered this many times, but never took advantage of it. Read More

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