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Dystonia Medical Research Foundation
"Founded in 1976, the Dystonia Medical Research Foundation (DMRF) is a 501(c)3 organization dedicated to serving all people with dystonia and their families. Since its inception, the DMRF has grown from a small family-based foundation into a dynamic membership-driven organization led by a Board of Directors and network of volunteers with personal connections to dystonia. Because dystonia hits so close to home for our directors and volunteers, the DMRF leadership is motivated by an unrelenting drive to find a cure and an unwavering commitment to serving people affected by dystonia.
Mission & History
The mission of the DMRF is to advance research for more treatments and ultimately a cure, to promote awareness and education, and to support the needs and well being of affected individuals and families. The membership of the DMRF is comprised of individuals living with all forms dystonia, their friends and families, donors, healthcare professionals, and researchers, uniting people of all backgrounds and abilities to better serve those living with dystonia.
Click here to Find a Healthcare Professional – The DMRF maintains a directory of physicians and healthcare providers with experience and/or interest in treating people with dystonia. Please note that the professionals listed in this directory vary in their experience and specific areas of expertise and have voluntarily chosen to be listed. The listing of these persons does not constitute or imply a recommendation or endorsement by the DMRF. When considering these healthcare providers, we strongly encourage you to investigate thoroughly and ask questions about the training of the medical team and how many dystonia patients they treat and what forms. Click here if you are a physician who treats dystonia and wish to submit your information to be added to the directory.