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Posts in 'Patient Care'
Patient-Centered Care: A Must Have for Our Kids
By Lee Vander Loop CP Family Network Editor When you read the words “Patient-Centered Care,” what comes to your mind? When I first encountered the phrase, I was confused. Shouldn’t all medicine be ‘patient-centered’ since it is about the patient and, if this is new, what was the approach before? CP Research Study Seeks Parents... Read More
Feeding Tubes for Nutrition and Medication
By John Lehman Sometimes, depending on the severity of the disorder, children with cerebral palsy have difficulties feeding themselves. In these cases, a feeding tube may be necessary for your child to meet his or her dietary and nutritional requirements. Feeding tubes could also be used to allow your child an easier way to take... Read More
DIY Blenderized Diets for Tube Feeding
By Lee Vander Loop CP Family Network Editor Some children with severe cerebral palsy have feeding disorders which require tube feeding. Children who are unable to fulfill their nutritional needs using traditional feeding methods, those with oral motor skill dysfunction or children at risk for aspiration are typically candidates for tube feeding. Often, doctors prescribe... Read More
The Benefits of Family-Centered Care
Many, if not most, treatment plans for children with CP are centered exclusively on the child. While a child’s interests must always be considered, the narrow focus of such plans can overlook crucial factors, like “living environment” and “family dynamic.” Read More
Adaptive Seating Devices for Children with CP
Technically speaking, adaptive seating is defined as “modifications to seating devices to improve sitting posture and/or postural control in mobility-impaired individuals.” In layman’s terms, this means your child may use a special desk or wheelchair that has been personalized to meet their needs. Read More