Tips for Parents

By Lee Vander Loop CP Family Network Editor I once saw a cartoon in the newspaper that featured a conversation between a sleep-deprived mom and dad arguing over who should get up for the 3 a.m. feeding. It was a reminder that sleeplessness is an inevitable part of parenting a newborn that most, at least... Read More

Selecting toys for children that have cerebral palsy can present a challenge for some parents, friends, and caregivers. It’s important to choose toys that are easy for children with CP to use so that they can have fun safely, regardless of their difference in abilities. Rest assured that there are many options available. Switch-Adapted Toys... Read More

Cerebral palsy can lead to challenges that make it difficult for children to walk on their own. As symptoms and severity of CP vary, different types of wheelchairs may be most appropriate for different children. A wheelchair may make everyday activities easier for children with CP, improving the quality of life for both the child... Read More

When your child needs a particular medication, therapy, treatment, or assistive device, your request to an insurance company, government agency or other funding source can sometimes be denied. Oftentimes they will require a letter of medical necessity, which is typically provided by your physician or therapist. Letters of medical necessity are critical to getting coverage... Read More

CPFN Special Contributors Anita Howell and Lisa Viele explain the federal “Stay Put” rule—which gives parents a voice when making decisions about their children’s education—and how it impacted Anita’s son, Ryan. TRANSCRIPT Text: Ever walk into an IEP (Individualized education plan) meeting and feel overpowered by the teachers and their plans? The federal “Stay Put”... Read More

Cerebral palsy, a lifelong condition caused by damage to the developing brain, can result in problems with bodily movement, memory, attention, and more. Many factors—including, lack of oxygen to the fetus, and trauma sustained before, during, or shortly after birth—can cause the condition. However, in some cases medical malpractice is to blame. Unfortunately, you may... Read More

By Anita Howell CPFN Special Contributor Most school districts are in full swing by now and, regardless of what turmoil the pandemic is currently bringing, there are a few things about back-to-school that remain consistent every year. Let’s take a look at a few. Finding Your Voice for Your Next IEP Meeting For those of... Read More

Dyskinesia by definition is a movement disorder. Involuntary (not within a person’s control) muscle contractions create uncontrollable bodily movements. These involuntary movements are often triggered when trying to perform everyday tasks, such as reaching for a glass of water. There are three general categories of dyskinetic movement disorders: Dystonia presents as twisting and repetitive type... Read More

Each individual diagnosed with cerebral palsy may face special challenges, and no one-size-fits-all plan for treatment exists. Many individuals diagnosed with cerebral palsy (CP) experience significant physical setbacks. As a result, physical therapy for cerebral palsy is often a core element of treatment. Your child’s team of healthcare professionals can work with you to determine... Read More

Cerebral palsy can result if a baby’s cerebral motor cortex does not develop normally during fetal growth, or if the child experiences a brain injury before, during, or after birth. Though this brain damage cannot be repaired, various treatment options can sometimes improve a child’s capability and prognosis. Generally speaking, the earlier treatment begins, the... Read More