Posts in 'Updates'

Camp Smiles – Your Area

Updates

By: Anita Howell Camp Smiles turns 3 this year!!! We are now Camp Smiles – Grand Strand and operate as our own stand alone nonprofit. We have a proven system, community support, and an amazing team of people. Camp Smiles Grand Strand is set to be around for years to come. Now it is time... Read More

Patient-Centered Care: A Must Have for Our Kids

Patient Care, Updates

By Lee Vander Loop, Editor CP Family Network When you read the words “Patient-Centered Care,” what comes to your mind? When I first encountered the phrase, I was confused. Shouldn’t all medicine be ‘patient-centered’ since it is about the patient, and if this is new, what was the approach before? CP Research Study Seeks Parents... Read More

10 Years After Lizzy’s Trial: Taking Care of Lizzy For Life. Thanks, Ken Suggs (p.2)

Birth Injury, Updates

(Looking Back and Moving Forward – continued) The doctor’s attorney asked questions about “studies” and past testing from others and how this case compares. They were hoping for some genetic connection for what happened to Lizzy. I wasn’t impressed and this expert was weak and seemed to hurt their case. The next person they called... Read More

Bullying and Children With Special Needs

Tips for Parents, Updates

By: Amy Kristine Williams To parents, bullying can seem like one of the more baffling aspects of childhood. Why should one child be singled out so unfairly? The truth of the matter is that there’s no real, justifiable reason. Yet, parents need to know how to deal with bullying, as this is something encountered by... Read More

What the ADA Means for People with Cerebral Palsy

Advocacy, In the News, Updates

By: Emerson Arehart In the United States, the Americans With Disabilities Act (ADA) can play an important role in the lives of people with cerebral palsy (CP). Knowing your rights under the ADA is an important step in making sure CP doesn’t limit you or your child’s potential – especially at school and in the... Read More

Looking Back and Moving Forward: 10 Years After Lizzy’s Trial

Birth Injury, Stories, Updates

By: Lisa Viele Ten years ago we started our trial. I remember it clearly. Well, most of it. Lizzy was 5. We had moved from Sumter, SC to Myrtle Beach in 2003. My husband Damon was teaching and coaching. Same thing he did in Sumter. A brand new school opened and he was blessed to... Read More

Camp Smiles Gives Kids with Cerebral Palsy New Hope

Advocacy, In the News, Updates

By: Anita Howell This isn’t just an article about a new camp, cerebral palsy, or Down syndrome. I pray that it is an article that stirs hope, courage, passion, and faith. A Phone Call When I Needed It The other day, as I dashed in and out of the rain and darted up the stairs,... Read More

Justice for Jordan: A Mother’s Story

Stories, Updates

By: Nicole Carter I’m now a single mom with three kids. Jordan is my youngest. I gave birth to Jordan in a Tennessee hospital in 2005, and that day changed my life. Since I have diabetes, I was going to a specialty clinic for high-risk mothers and having the non-stress test done twice a week.... Read More

Fetal Heart Monitoring: How Mistakes Happen in Labor and Delivery

Causes of Cerebral Palsy, Updates

By Giles Manley, M.D. CP Family Network Medical Director Electronic fetal heart monitoring is used in nearly all hospital births in the U.S. The technology has been around for decades. But medical records of brain-injured infants I review each week frequently show that although fetal monitoring was showing the baby was experiencing high levels of... Read More

Advice to Expecting Parents about Assisted Delivery Using Vacuum Extraction

Causes of Cerebral Palsy, Updates

By Giles Manley, M.D., J.D. Medical Director, Cerebral Palsy Family Network When a mother is unable to deliver a child on her own, assistive equipment may be used to help speed the birthing process. Because the need for vacuum extraction (VE) is always a possibility during childbirth, parents need to be aware of what it... Read More

Do you need CP help?