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Posts in 'Updates'
The Best Apps for Children with Cerebral Palsy in 2020
We’ve compiled a list of some of the best special needs apps out there – and written a quick synopsis of how each one works! Read on to learn about some of the best assistive communication and educational apps available. Read More
Camp Smiles – Your Area
By: Anita Howell Camp Smiles turns 3 this year!!! We are now Camp Smiles – Grand Strand and operate as our own stand alone nonprofit. We have a proven system, community support, and an amazing team of people. Camp Smiles Grand Strand is set to be around for years to come. Now it is time... Read More
Patient-Centered Care: A Must Have for Our Kids
By Lee Vander Loop CP Family Network Editor When you read the words “Patient-Centered Care,” what comes to your mind? When I first encountered the phrase, I was confused. Shouldn’t all medicine be ‘patient-centered’ since it is about the patient and, if this is new, what was the approach before? CP Research Study Seeks Parents... Read More
10 Years After Lizzy’s Trial: Taking Care of Lizzy For Life—Thanks, Ken Suggs
(Looking Back and Moving Forward – continued) By: Lisa Viele The doctor’s attorney asked questions about “studies” and past testing from others and how this case compares. They were hoping for some genetic connection for what happened to Lizzy. I wasn’t impressed and this expert was weak and seemed to hurt their case. The next... Read More
Bullying and Children With Special Needs
By Amy Kristine Williams To parents, bullying can seem like one of the more baffling aspects of childhood. Why should one child be singled out so unfairly? The truth of the matter is that there’s no real, justifiable reason. Yet, parents need to know how to deal with bullying, as this is something encountered by... Read More
What the ADA Means for People with Cerebral Palsy
By Emerson Arehart In the United States, the Americans With Disabilities Act (ADA) can play an important role in the lives of people with cerebral palsy (CP). Knowing your rights under the ADA is an important step in making sure CP doesn’t limit you or your child’s potential – especially at school and in the... Read More
10 Years After Lizzy’s Trial: Looking Back and Moving Forward
By: Lisa Viele Ten years ago we started our trial. I remember it clearly. Well, most of it. Lizzy was 5. We had moved from Sumter, SC to Myrtle Beach in 2003. My husband Damon was teaching and coaching. Same thing he did in Sumter. A brand new school opened and he was blessed to... Read More
Camp Smiles Gives Kids with Cerebral Palsy New Hope
By: Anita Howell This isn’t just an article about a new camp, cerebral palsy, or Down syndrome. I pray that it is an article that stirs hope, courage, passion, and faith. A Phone Call When I Needed It The other day, as I dashed in and out of the rain and darted up the stairs,... Read More
Justice for Jordan: A Mother’s Story
By: Nicole Carter I’m now a single mom with three kids. Jordan is my youngest. I gave birth to Jordan in a Tennessee hospital in 2005, and that day changed my life. Since I have diabetes, I was going to a specialty clinic for high-risk mothers and having the non-stress test done twice a week.... Read More
DIY Blenderized Diets for Tube Feeding
By Lee Vander Loop CP Family Network Editor Some children with severe cerebral palsy have feeding disorders which require tube feeding. Children who are unable to fulfill their nutritional needs using traditional feeding methods, those with oral motor skill dysfunction or children at risk for aspiration are typically candidates for tube feeding. Often, doctors prescribe... Read More