Posts in 'Updates'

Camp Smiles – Your Area

Updates

By: Anita Howell Camp Smiles turns 3 this year!!! We are now Camp Smiles – Grand Strand and operate as our own stand alone nonprofit. We have a proven system, community support, and an amazing team of people. Camp Smiles Grand Strand is set to be around for years to come. Now it is time... Read More

Are These Crazy Little Oils Really Effective?

Cerebral Palsy Information, Updates

By: Anita Howell As a hard core skeptic and Mom to a child with special needs, I’m often torn between responsibly managing finances and leaving no stone unturned in helping our son, Ryan. Even with so much chatter about essential oils, I was still skeptical. However, a sweet friend gave us an essential oils starter... Read More

Patient-Centered Care: A Must Have for Our Kids

Patient Care, Updates

By Lee Vander Loop, Editor CP Family Network When you read the words “Patient-Centered Care,” what comes to your mind? When I first encountered the phrase, I was confused. Shouldn’t all medicine be ‘patient-centered’ since it is about the patient, and if this is new, what was the approach before? CP Research Study Seeks Parents... Read More

Happy 10th Anniversary, CPFN!

Stories, Updates

By Lee Vander Loop What an exciting milestone! As an editor of the Cerebral Palsy Family Network, I’m honored to write this blog to commemorate this anniversary and reflect on this past decade and what it has meant to me to be a part of this wonderful organization. Before starting, I want to take this... Read More

10 Years After Lizzy’s Trial: Taking Care of Lizzy For Life. Thanks, Ken Suggs (p.2)

Birth Injury, Updates

(Looking Back and Moving Forward – continued) The doctor’s attorney asked questions about “studies” and past testing from others and how this case compares. They were hoping for some genetic connection for what happened to Lizzy. I wasn’t impressed and this expert was weak and seemed to hurt their case. The next person they called... Read More

Camp Smiles – One Year Later!

Education, Stories, Updates

By Anita Howell Watch more CPFN TV One year, dozens of hurdles, a couple of panic attacks, a few doubts and thousand of smiles later, we have an amazing annual camp for children with Cerebral Palsy or Down Syndrome – Camp Smiles!!!!! At the end of the first day, every hurdle, panic, and doubt was... Read More

Why I View My Cerebral Palsy as a Blessing

Updates

By Ashley Mohesky Cerebral palsy (CP) is a neurological disorder that prevents the brain from communicating to the muscles. There are different types of cerebral palsy, but everyone with the disorder goes through challenges that affect the muscles in some way. Aside from the muscles not being able to function properly, there are some cases... Read More

Fundraising Effort Focuses on Research to Cure Cerebral Palsy

Medical Research, Updates

Will it one day be possible to cure cerebral palsy? Scientists working in a new field of study known as “regenerative medicine” think so. But support is needed to further the research, according to two non-profit organizations founded by parents of children with CP. Cerebral Palsy Family Network (CPFN) and Cure CP have kicked off... Read More

Cure CP Continues to Support the Incredible Research Work of Dr. Joanne Kurtzberg

Medical Research, Updates

By CureCP.org CureCP.org recently interviewed Dr. Joanne Kurtzberg for their monthly e-newsletter. The following is transcript of their interview. Dr. Kurtzberg, Duke Medical physician and NIH investigator, is an internationally renowned expert in pediatric hematology/oncology, pediatric blood and marrow transplantation, umbilical cord blood banking and transplantation, and novel applications of cord blood in the emerging... Read More

Your Voice Has Been Heard – National Institutes of Health Survey Results

Medical Research, Updates

By Paul Gross, Founder of the Cerebral Palsy Research Network In April, many of you participated in a survey about medical treatments for your child. The survey was intended to help a group of researchers decide on the most important cerebral palsy treatments to study. The survey garnered more than 1,200 responses and your answers... Read More

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