Posts in 'Patient Care'

Eating Problems Stressful but Treatable

Associated Conditions, Patient Care, Stories, Tips for Parents

By Lee Vander Loop CP Family Network Editor When my first daughter was born, she exhibited a total absence of any type of oral motor skill and necessitated a feeding tube from birth. Her birth injuries occurred as a result of “cord complications of unknown origin.” When our second child was born with cord complications,... Read More

The Benefits of Family-Centered Care

Patient Care, Tips for Parents

Many, if not most, treatment plans for children with CP are centered exclusively on the child. While a child’s interests must always be considered, the narrow focus of such plans can overlook crucial factors, like “living environment” and “family dynamic.” Read More

Adaptive Seating Devices for Children with CP

Equipment, Patient Care

Technically speaking, adaptive seating is defined as “modifications to seating devices to improve sitting posture and/or postural control in mobility-impaired individuals.” In layman’s terms, this means your child may use a special desk or wheelchair that has been personalized to meet their needs. Read More

8 Steps to Maximize Doctor Appointments for Special-Needs Children

Doctor Visits, Patient Care, Tips for Parents

Doctor appointments are all too frequent in the lives of families with special needs children. The appointments themselves and the issues addressed, however, are seldom routine. Given that you will have 15-30 minutes at most with the doctor, making the most of this time is critical. Read More

When to Contact Your Child’s Doctor During the Holidays

Doctor Visits, Patient Care, Tips for Parents

You may have read this blog post in which Giles Manley urges parents and expectant women: Call a doctor if you feel like you should, even and especially over the holidays! This advice rings equally true for the families of children with special needs Read More

Was Your Child's CP Preventable?