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Oregon Center for Children & Youth with Special Health Needs
OCCYSHN’s MISSION is to improve the health, development, and well-being of all Oregon’s children and youth with special health care needs. OCCYSHN is part of OHSU’s Institute on Development and Disability. We are funded by a Title V block grant from the federal Maternal and Child Health Bureau. Our work is grounded on the following state and federal public health priorities: Medical home: The U.S. Health Resources and Services Administration defines medical home as “a cultivated partnership between the patient, family, and primary provider in cooperation with specialists and support from the community.”
Medical homes provide coordinated, comprehensive, culturally appropriate care.
Transition from pediatric to adult health care: Youth with special health needs grow up to be adults with special health needs. They may need legal, logistical, financial, and medical help with this transition. Culturally and linguistically appropriate services: To be effective, services for children with special health needs and their families must align with their language and culture.
Programs & Projects
Enhancing Oregon’s System of Services for Children and Youth with Special Health Care Needs Improving coordination and integration of services for children and youth with special health needs in Oregon CaCoon Care Coordination provided by home-visiting public-health nurses Community-based ASD Identification OCCYSHN is working in partnership with the Oregon Commission on Autism Spectrum Disorders (OCASD) to implement recommendations related to the identification of young children with ASD Community Connections Network Multidisciplinary teams that meet across the state to serve specific children and to address community needs Family Involvement Network Using the wisdom of families to improve health care and services Shared Plans of Care A tool and process to plan and coordinate care for children and youth with special health needs. Medical Home Ensuring every child or youth with special health needs in Oregon has a medical home