A Mother’s Quest to Feed Her Child

In the News, Tips for Parents, Updates

When you’re having a child, all you really care about is that he or she is healthy. Unfortunately, life doesn’t always work out that way. My husband and I discovered this the day our son, AJ, had a major seizure when he was 5 months old. Following that were diagnoses of cerebral palsy (CP), epilepsy... Read More

Spastic Diplegia – Overview and Considerations for Children

In the News, Types of Cerebral Palsy, Updates

Spastic diplegia is a form of cerebral palsy that primarily affects the legs, hips, and pelvis. Arms can also be affected, but to a lesser degree. Considered a less severe form of cerebral palsy, children born with spastic diplegia usually have average to slightly below average intelligence and language skills. Read More

Selective Dorsal Rhizotomy: An Overview

In the News, Treatments and Therapies, Updates

Selective dorsal rhizotomy (SDR) is an irreversible neurosurgery performed on the lower spinal cord to treat spasticity, especially in the lower limbs. A neurosurgeon identifies nerve rootlets in the spinal cord that are sending abnormal messages and cuts them. Read More

5 Ways to Help Siblings Understand Your Child’s Cerebral Palsy

In the News, Tips for Parents, Updates

It should not be surprising that we received a lot of feedback on the community question: “How do you explain your child’s cerebral palsy to other siblings to help them understand?” There are more than six million people with disabilities living in the United States alone, and most of these people have brothers and sisters. Read More

Making the Decision to Place a Child in a Residential Center

In the News, Respite Care, Updates

One in six children in the U.S. lives with a chronic disability. Some will be placed in a residential facility for long-term care. For parents of some children with cerebral palsy, this can be an excruciating and exhausting choice. I know this firsthand. Read More

How to Take Time for Yourself

In the News, Respite Care, Updates

Respite care. How many parents really take advantage of this short-term break from caring for a family member with cerebral palsy? As a single mother, I was offered this many times, but never took advantage of it. Read More

Adaptive Seating Devices for Children with CP

Patient Care, Updates

Technically speaking, adaptive seating is defined as “modifications to seating devices to improve sitting posture and/or postural control in mobility-impaired individuals.” In layman’s terms, this means your child may use a special desk or wheelchair that has been personalized to meet their needs. Read More

The Benefits of Family-Centered Care

Patient Care, Updates

Many, if not most, treatment plans for children with CP are centered exclusively on the child. While a child’s interests must always be considered, the narrow focus of such plans can overlook crucial factors, like “living environment” and “family dynamic.” Read More

How Do I Find Out About Clinical Trials in My Area?

In the News, Medical Research, Updates

In a previous blog, we covered what clinical trials are, the 4 FDA-mandated phases of a trial, the benefits and risks of participating, what current clinical trials relate to cerebral palsy and what might be involved in qualifying for one. The next step is learning how to find clinical trials in your area. Read More

Where to Donate Old AFOs

Updates

On first thought, you may think that ankle-foot orthotics (AFOs) cannot be “recycled,” since they are molded to custom-fit a specific child. However, donating your AFOs actually can help children in need! Some organizations modify the shape of used AFOs, fitting them to their new owners. Read More

Do you need CP help?